I had never heard of Polycystic Kidney Disease before reading about it on my friend Belinda's blog a few months back. This was also the same blog where I first heard of "blog candy", another new term for me. Now, Belinda's bringing the two together to raise some money for PKD research. Here's a link to her post (Belinda's Blog) and some information about the disease.
Polycystic Kidney Disease is one of the most common, life-threatening genetic diseases, affecting 600,000 Americans and 12.5 million people worldwide. PKD is more common than Down syndrome, cystic fibrosis, muscular dystrophy, and sickle cell anemia - combined. Polycystic Kidney Disease causes fluid filled cysts to form on both kidneys. Over time, these cysts grow and multiply, sometimes dramatically in size. For most patients, their PKD ultimately causes the kidneys to shut down. Once that happens, dialysis and transplant are their only options to prolong life. Parents with the dominant form of PKD have a 50% chance of passing the disease on to each of their children. For the recessive form, ARPKD, parents have usually never heard of PKD until their newborn is diagnosed with it. For 30% of newborns, ARPKD is fatal.
Although there is no treatment or cure for Polycystic Kidney Disease, there is hope… Stacey's dad has had 2 kidney transplants in the last year (the 2nd kidney is doing very well and as of June 30th he's past the 3 month post transplant mark!). But even though he now has a functioning kidney, the battle is far from over. He has other PKD related health issues to deal with on a daily basis. Plus, both Stacey and her sister each have a 50% chance of getting PKD. Please consider joining our fight — by donating to the cause, registering for the walk (and raising funds) — or both! Every little bit helps!
Donations to Stacey T and the PKD Foundation can be made here: www.pkdcure.org/staceyt.
Thanks Stephanie!
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